http://www.pmldnetwork.org/what_do_we_want/news_and_events_PMLD_seminar.html
The PMLD Network in the UK have put out another great resource called Top Tips for Partnership Boards. This excellent, simple brochure gives food for thought for Boards of Management and other bodies that need to listen to people with PIMD. Partnership Boards are encouraged to appoint a PMLD Champion, find out what life is like for someone with PMLD and their family, have a slot for PMLD on the agenda for each meeting, and make sure that boards consider the needs of people with PMLD in everything they do.
This last point is particularly resonant for me, as I’ve often considered trying to create an audit type system that enables people to critically analyse existing policies and procedures for the aplicability to the people with the most serve disabilities (adding this one to my list of things to do when I finish my PhD!)
sheri