From the PMLD Network listserve:
The report on “Communication and people with the most complex needs: What works and why this is essential,” which Sue Caton and I started last year, is now finished. The final report is available at
http://www.mencap.org.uk/document.asp?id=20568 for the main report and
http://www.mencap.org.uk/document.asp?id=20570 for the Easy Read version.
Sue and I would like to thank, most sincerely, all the members of this forum who contributed to the report. Your input was really appreciated, and we hope you like the final version.
Juliet Goldbart & Sue Caton, MMU firstname.lastname@example.org
I’ve had a flick through the report and I think it is excellent. It will be of interest to speech pathologists, teachers, service providers, and families. I think it also provides a a good template for other interventions (e.g., physio, OT, music therapy). I must say I’m also well chuffed to see HOP in there (a commitment to give a person 10 minutes of 1:1 time).
After several months of waiting, the UK Raising Our Sights video that accompanies the report is now on the Department of Health website. It has been segmented into parts, for download size purposes I assume. I recommend watching all parts – but if you have to choose, I would recommend starting with Victoria and Mitchell’s video (Alex and Simon perhaps are more in-line with having severe ID rather than profound – but nevertheless it is a good video).
I think this an important example of supporting adults with PIMD and it may be helpful to both services and families supporting people with PIMD.
Click here for both the report and the videos.
Cross posting this event that might be of interest (related to below mentioned report)
Raising our sights: services for adults with profound intellectual and multiple disabilities
Professor Jim Mansell
Friday 16 April 2.00pm – 5.00pm
Presented by Professor Jim Mansell, Director of the Tizard Centre, University of Kent
Implementation of new government policy for people with intellectual disabilities in England (‘Valuing People’) after 2001 has not made sufficient progress for people with more complex needs. A revision of the policy has identified this (‘making it happen for everyone’) as a goal. One of the groups identified as not receiving better services quickly enough are adults with profound intellectual and multiple disabilities. This master class describes the results of a review of services for adults with profound intellectual and multiple disabilities and its recommendations for action. Participants in the master class will have the opportunity to assess Victorian policy and practice in the light of the issues identified.
Enquiries to Professor Christine Bigby, C.Bigby@latrobe.edu.au – bookings essential
See new report by Jim Mansell on services for people with PIMD.
To find out more and link to the report click here.