“Like a two-year-old”…

A colleague reflected the discomfort telling us of the father of a 15-year-okd who had described his son a like a two-year-old… such a provocative comment… so many feelings and thoughts.

Using analogies to infants and children in the intellectual disability world… seems so often to go hand in hand with a tacit response, unspoken but shared.

But not all responses are the same. Not all intentions in uttering the words are the same. Not all interpretations of meaning are the same.

Hoping we can have a conversation to explore the use of age analogies, not to come to the “right” answer, but to understand different perspectives and the thinking (surface and deep) underlying the feelings.

I know I often stand as an outlier in using analogies of age. I know I need to unpack why I do this, and whether I should continue to do so. Can I encourage you to share your thoughts here on this often contentious topic… I will share some of my thoughts as a comment, as to keep the starter post neutral.

People with profound intellectual and multiple videos – in online training

Last year I was honored to be asked to be part of Nick Lennox and team’s fantastic online learning course focusing on the health of people with intellectual disability.

https://www.edx.org/course/well-able-improving-physical-health-uqx-able201x

Here is my little piece of it. I hope it does positive justice to people with profound intellectual and multiple disabilities, enhancing understanding, respect and consideration of them and those people who support them.

[wpvideo QOTp01Bd]

DVD cover Understanding Suraj
DVD cover

I was excited to see this snippet today called Understanding Suraj (read about it in the most recent UK Intensive Interaction Newsletter). I will definitely by buying the whole DVD. What do you think of it, how did it make you feel?

Nate Hajdu’s poem on friendship

I read this poem in a book (which I’ll talk more about soon). On many levels in resonated with me (whilst not being religious) and thought I’d share it. It came from the Jubilee Association of Maryland website: http://www.jubileemd.org/template/page.cfm?page_id=45

My Friend Charlie
Nate Hajdu shared this heart-felt poem at the Interfaith Disability Pre-Summit in Washington, DC on September 22, 2005.

My Friend Charlie

He is my friend: I am his friend
I help him out: He helps me to learn
I help him to learn: He helps me to grow
I help him to grow: He teaches me to accept

His struggle: Is my struggle
His vulnerability: Leads to my respect
My respect: Leads him to trust
His trust: Leads to my devotion

His availability: Feeds my desire to be needed
I keep his secrets: He keeps mine
We have an arrangement
His lack of self-consciousness: Leads to my tolerance
His constant need for stimulation: Leads to my patience
His discomfort: Sharpens my sensitivity
His unhappiness: Is my challenge
His presence: Eases my isolation
His loyalty: Leads to my loyalty
Which leads to mutual appreciation

His brokenness: Makes me accept my own brokenness
Which leads to healing
His humanity: Leads to personal connection
His steadfastness: Centers me

His smile: Is my reward
His joy: Lifts my spirits
His happiness: Gives me a sense of purpose
His struggles: Expose my anxieties
Which tests me
Then strengthens me
And in turn bolsters my faith

In guiding: I am guided
In helping: I am helped
In teaching: I am taught

In his laughter: There is joy
In that joy: There is energy
In that energy: There is spirit
In that spirit: There is grace